We're still here!

Hello again! I know it's been awhile since I have blogged. We have been caught up with spring sports, school ending, now summer camps starting and the list goes on. I am happy to report that Connor's appt went well yesterday with Dr. Standard. Xrays showed more bone growth and the shape of the femoral head continues to look great. Connor's ROM shows more progression each time he gets measured. Dr. Standard emphasized again the importance of working hard with his exercises whether it is at home or in PT. The most challenging part for Connor right now is his running and his external rotation in his hip is still weak. Dr. Standard and his PT staff gave us some good tips and exercises to focus on, particularly for these areas. We will continue his aqua therapy too. His PT in Hershey continues 3x week. We will re-evaluate his progress again at the end of summer to determine the number of PT sessions. The most beautiful words that I heard in yesterday's visit from Dr. Standard, "I believe Perthes is behind you now". Those 7 words will forever be in my mind. So proud of my little guy for BEATING this disease!!! We met some new friends at Sinai yesterday. Another young boy around Connor's age. As Connor was having his PT session, this other boy was too. The other boy just had his ex fix put on a week ago. So, their journey was just beginning. It was a very bitter/sweet moment for us. Sweet in the fact that it was a reminder of how far Connor has come in this journey. (So glad to be on this side of journey) But bitter to watch another child going through this. You could just see the distress on the mother's face. For us, remembering those very difficult months. It immediately brought my emotions right back to that time period. She and I spoke briefly about the boys. Come to find out they are staying at the RMH, just like we did. RMH is a wonderful place. I LOVE that we are constantly reminded of the wonderful people and resources available to us and other families. We had one more mission in Baltimore yesterday. Over this past year, our family and Central York School District went together and collected TABS from cans. Together we collected 22 bins! The Baltimore RMH uses these tabs for their shuttle, for gas money or other needs for the shuttle. We chose TABS as our mission because the shuttle was a huge resource for us when we stayed there. We used the shuttle several times a day for his appts. We hope to continue this mission and welcome you to join in on the fun!