Tuesday, January 28, 2014
The Countdown is ON!!!
With 18 days left, we are ALL anxiously anticipating the removal of Connor's External Fixator. This has been quite the journey these past 4 months. Connor has been absolutely AMAZING throughout this journey. Scott and I are so proud of him and all that he has had to endure so far. Somehow he never complains about his situation. He just takes it in stride. He is such a daily inspiration to us.
He and I have been making a list of the simple things he will be able to do again, like wear regular pants/underwear, sleeping in his own bed, walking/running on his own, (ok, so maybe this one is a BIG one) and attending school. Isn't that what life should be about, the little things?
He has been preparing for the big day by getting fitted for his new brace, and having his pre-op physical and bloodwork done.
Some of you may be wondering about the new brace. During the removal of the Ex Fix, Dr. Standard will put the new brace on. The new brace is called a Scottish Rite Brace (google it). He will wear it for 3 months. The first 6 wks. the brace will be worn 24/7. The remaining weeks, it will be worn at night. It will be an "A" frame brace that fits around both hips. It can be removed to shower and change clothes. The brace will be worn over his clothes, so this, too, will be visible. The purpose of this brace is to "contain" the hip so healing can continue while learning to walk again. The first few weeks post operation are very intense with PT. He will have PT everyday in Baltimore for 2 wks.
Thank you so much for the continued support on texts,emails, and cards. I know this has been a huge help in encouraging Connor to keep a positive outlook during his journey with Perthes.
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Woo Hoo! Bring on Valentine's day...and onto the next chapter of Connor's journey to complete healing. Tell him that there's a little girl at my house who tracks his dr's appts on a weekly basis ("oh, Connor was at the doctor today"). She asks lots of questions and prays for him continuously....remind him that his inspiration is far reaching...
ReplyDeleteWho ever thought that surgery would be a blessing on Valentine's Day?!?! We are blessed to be able to stand by you guys and help!
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