Day 3- Today was a "big day" according to the nurses. It's the
beginning if the weaning process of the epidural and the removal of the
catheter (Allelujah!!!) All machines were turned off...no more beeps!!
But then we had whistles and bells going off on the PEDS unit cuz the
fire alarm was malfunctioning. At first, I thought my sleep deprivation
had hit an all time high and it was all in my head. Glad to know I still
have some sanity left. Most of the day, Connor was comfortable and
even managed to give us that great smile again. Since Connor was doing
so well, I decided to head home for the night and spend time with Emma
and Callie. Scott stayed with Connor. It was so great to embrace my
girls and have some snuggle time with them. Watching Emma and some
neighbor friends doing the rain dance outside yesterday brought a smile
to my face. I cherish those giggles and squeals so much more now.
Later
in the evening, I checked in with Scott and was sad to hear that Connor
had taken a few steps backward with pain. Connor was extremely upset
and scared. As much as I wanted to spend more time with the girls, I
knew it was best for Connor to have mom and dad by his side to help him
get over this hurdle. My heart was torn but knew it was time to go.
Thankfully, the girls have been loving their time with grandma and papa
and didn't skip a beat. I arrived back in Baltimore around midnight.
Connor finally got settled around 3am. Slept for a few hours before the
nurse came in again. So, needless to say, it was a sleepless night for
all. Today (Saturday), Connor is a little better, just exhausted. The
pain is manageable again. He did have an awesome moment with PT today.
He got himself up out of bed and took 6 small steps, to the wheelchair.
All with minimal assistance. Just to give you an idea of how much work
it is for him to do all that took approx. 15 mins. WHAT AN AMAZING
ACCOMPLISHMENT!!!
You go Connor! Little steps are big steps in the process!
ReplyDeleteWoo hoo Connor! You go buddy!!! Have fun at RMH!!!
ReplyDeleteGreat work Connor! Never doubted you!
ReplyDeleteKeep up the good work! You are amazing!
ReplyDeleteThanks for the update. I'm glad mommy got to spend some time with her girls but sorry to hear it was short-lived and that Connor had a minor setback. One step backward but 6 steps forward is awesome though! I've been thinking about you and am continuing to pray for you all.
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