CELEBRATE!

Today, we CELEBRATE......We are VERY happy to report that Connor has reached his first HUGE milestone on his Perthes journey. We witnessed on his X-rays the beginning stages of soft tissue (new bone growth) forming on his hip bone. Dr. Standard's response, "very pleased with the results". There were many tears of joy! Going into this journey, we tried to prepare ourselves for a LONG, and at times, DARK road of ups and downs. We continue to lean on our faith for strength, patience, and peace. Today, God gave us some answers and a "night light", if you will, for those dark moments. Showing us that HE is on this journey as well. All along we heard, "the hip looks good and in good position". We would leave the previous appt's pleased but always still felt like a piece was missing. TODAY, we left feeling fulfilled and a confirmation that his body is starting to heal itself. Although, Connor's journey is far from over and he has many hurdles to cross, TODAY, we CELEBRATE his first milestone!

Let It Snow!!

HALF WAY!!!!!    Woot woot!!! Connor is at his halfway point with his External  Fixator. Our tentative removal day is Feb. 14th (Valentine's Day). We are scheduled to see Dr. Standard tomorrow morning. Due to the snow and ice, we decided to travel to Baltimore today,  so we aren't fighting the AM commute with bad weather. We are so fortunate to have the Hackerman-Patz House available on the hospital campus. So very thankful to have my parents be flexible to stay with the girls. In the morning, Connor starts out with a PT session, followed by a clinic appt with surgeon. Looking forward to a good report tomorrow from Dr. Standard and anxiously awaiting results of X-rays. Stay tuned......

This week...

This has been an unusually tough week for Connor. He has experienced a lot of discomfort. Connor expresses most of his discomfort to be due to his knee. More muscle spasms have occurred this week as well. Earlier this week at PT, his muscle spasms were interfering with his pt session and could only get a ROM of 40 degrees. PT didn't seem too concerned since the regression was due to spasms. However, his discomfort has continued throughout the week. We head to Baltimore for PT tomorrow and, hopefully, get more answers. His next clinic appt with Dr. Standard is on Monday the 9th, which he will get X-rays again.

Happy Thanksgiving!

HAPPY THANKSGIVING!!!!  (a little late) Hope you all had a wonderful day. We had family over to our house for Thanksgiving. This allowed Connor to stay comfortable and have all of his equipment handy. Although, this journey has had its ups and downs, we are constantly reminded to be THANKFUL for the little things in life. We continue to count our blessings which include all of you. Connor continues to do well. He does PT 2x a week and does his home exercises on a daily basis. We are amazed everyday of his positive spirits. I know, for sure, I would be at my wits end with this journey if I were him but he just goes about his business and doesn't complain one bit of his bionic leg.
So, Connor has almost had the Ex Fix on for 2 mos. In some ways, it feels like yesterday that he had surgery but then most days it seems like an eternity. We continue to take a day at a time. For the most part, his nights are manageable and seems to have a good routine down. He has become quite comfortable getting around in his walker. I have to remind him to slow down sometimes but then again, he is a very active 8 year old. We put up our Christmas tree this past weekend. The kids were very excited to decorate. Here is a picture of Connor helping the girls run the train.